Caregiver Resources

Many people who become cancer caregivers take on the role because they are close to the person with the diagnosis, but that doesn't mean they are familiar with caregiving skills. The combination of unfamiliarity with caregiving, stress, concern about your loved one and a sudden change in responsibilities can affect every aspect of your life. If you’re wondering what to do first, here are a few grounding steps:

Try to attend the first oncology appointment if you can. Being there helps you understand the care plan and hear directly from the care team. Bring a notebook or use your phone to jot down questions—both yours and your loved one’s—as they come up. It’s also a good time to start a care folder, either on paper or digitally, where you can keep track of paperwork, contacts, and key dates.

If you’re juggling work, talk with your employer early. Ask about options for a flexible schedule or family leave. Many caregivers are surprised to learn that they qualify for time off or remote work options under federal policies like the Family and Medical Leave Act (FMLA).

Above all, give yourself permission to breathe.

Cancer care isn’t just about medicine—it’s about the day-to-day moments of showing up. And while each person is different, here are some ways you might be able to help:

At medical appointments, your presence can offer reassurance. Being a second set of ears, helping them prepare questions, or simply sitting beside them in the waiting room can mean more than you realize.

At home, even small gestures make a difference. You might prepare meals, help organize medications, or just create a comfortable, quiet space where they can rest and recover.

Emotionally, perhaps the most important thing you can do is listen. Your loved one may not always want advice—they may just want to feel heard. Create space for honest conversation, allow moments of silence, and remind them often that they’re not in this alone.

Cancer treatment can take a toll in many ways—physically, mentally, and emotionally. Your loved one may experience fatigue, loss of appetite, discomfort, or emotional swings. Some days will be harder than others.

It helps to remember that these side effects aren’t personal. Your patience and understanding, especially on the tough days, are part of the care you’re giving.

And when they’re ready, help them find joy in small things again—a favorite book, a walk outside, a shared meal. These moments matter.

This journey is hard—but you're not walking it alone. Every meal you cook, every ride you give, every moment you simply sit and hold space—those are acts of care that matter more than words can say. You are part of your loved one’s healing. And you deserve support, too.

Small acts of self-care make a difference when you are a caregiver. Here are 10 ways to care for yourself during this time:

• Go for a walk or stretch outside
• Have lunch with a friend
• Watch a funny movie or read a good book
• Enjoy a warm bath
• Listen to music or relax with a meditation app
• Attend a support group
• Take five minutes to breathe or meditate
• Talk with a mental health professional
• Accept those kind offers from friends and neighbors who volunteer to help
• Consider respite care – temporary relief from your caregiving duties

Even if you're managing well, consider accepting help where you can. A few simple adjustments can go a long way in relieving daily stress. You might explore:

• Grocery or meal delivery services
• In-home care for your loved one
• A care calendar shared with friends or family
• Laundry or housecleaning services
• Transportation assistance to appointments
• Keep a running list of tasks people can help with. That way, when someone says, “Let me know if I can help,” you’ll be ready.