Caregiver Commons

Caregiver Commons is designed as a gathering place for wonderful caregivers just like you. You deliver such amazing care each and every day, and knowing this, we have compiled some great resources in hopes of making your day-to-day lives a little bit easier. We hope you will find them to be both interesting and informative.

Please know that this page is a work in progress and our goal is to update it frequently with new information. We also welcome any comments and feedback you may have. Enjoy!

BENEFICIAL BOOKS:

  • Creating Moments of Joy (J. Brackey)
    This book acts as a journal for caregivers that can be used on a daily basis. It includes 5 distinct sections, with step-by-step approaches for creating moments of joy.

  • Being Mortal (A. Gawande)
    This book, written by surgeon A. Gawande, explores different avenues of end of life care that may be better oriented to quality of life , comfort and dignity during one's last weeks of life.

  • Alzheimer's Early Stages: First Steps for Family, Friends, and Caregivers (D. Kuhn)
    This book acts as a great source of knowledge for those who may be unfamiliar with Alzheimer's disease. It includes information about day-to-day care, research, treatment, progression and caring for the caregiver (you!).

  • Striped Shirts & Flowered Pants (B. Schnurbush)
    This book is great for little ones who may have an older loved one with Alzheimer's disease. It offers easier to understand explanations for children and tips for parents to help their children better understand what's going on with grandma/grandpa.

  • Helping Yourself Help Others (R. Carter)
    This encouraging and empowering book, written by former first lady Rosalynn Carter, combines stories of her personal caregiving experience with guidance and advice for common problems and challenges faced by caregivers.

WORTHWHILE WEBSITES:

  • National Alliance for Caregiving
    The National Alliance for Caregiving focuses on advocacy, research, and advancement for family caregivers. The website offers numerous resources for family caregivers who may want to know current and past efforts made in caregiving research. Resources included on the website offer a wide array of topics to provide support and education in areas including finances and personal health.

  • Family Caregiver Alliance
    The Family Caregiver Alliance stand by their values of quality, innovation, respect, efficiency, collaboration, and diversity to benefit caregivers and improve their quality of life. The website includes several sources in the form of videos, classes, and readings to educate and support caregivers.

  • Rosalynn Carter Institute for Caregiving
    The Rosalynn Carter Institute for Caregiving recognizes the difficulties of caring for another person while also caring for yourself. The Institute's mission is to offer education, advocacy, support, and research for caregivers of all types.

  • AARP: Public Policy Institute
    The AARP's Public Policy Institute focuses on the issues that face aging Americans. The Public Policy Institute promotes the development of new, innovative and beneficial policies, while also encouraging healthy public debate. Their website includes news on new reports, information on events and conferences, a blog, new initiatives and more!

  • AARP: Financial Costs of Family Caregiving
    An article by AARP outlining the out-of-pocket hit caregiving families feel when supporting a relative or close friend with self-care needs.

  • Alzheimer's Reading Room
    A blog founded and run by Bob DeMarco during the years that he cared for his mother who had Alzheimer's disease. It offers a wide variety of articles, personal anecdotes, practical solutions to common problems, reports of news from the medical and research fronts, guest articles by experts and reader responses.

  • Caring.Com
    This site has a caregiver wellness section and provides information on different types of living/housing options, support groups, and health conditions that impact caregivers and those they care for.

SUPPORT PROGRAMS:

  • FAMILIES
    FAMILIES brings the nationally recognized evidence-based protocol of the New York University Caregiver Intervention to Virginia to support those caring for a loved one with dementia. For more information and/or to see if you meet eligibility requirements, please follow the link to our website.

  • Caring For You, Caring For Me
    This award-winning program, and the signature program of the Rosalynn Carter Institute for Caregiving, consists of 5 weekly seminars designed to address the needs of those engaged in elder care, including family members, professional staff, and volunteers.

  • Operation Family Caregiver
    This evidence-based program coaches the families of returning service members and veterans to manage the difficulties that come with coming home. OFC is a personalized program, tailored specifically to the struggles of each family.

SUPPORT GROUPS:

  • Memory Café
    Memory or Alzheimer's Cafés act as safe gathering places for individuals with memory loss and their caregivers to talk about their experiences in a supportive social environment. Most cafés have meetings on a weekly or monthly basis that last for a few hours.

  • TSA Cares
    TSA Cares is a phone service that helps elderly passengers or those with disabilities or medical needs receive personal help prior to being screened at the airport. When requesting assistance through TSA Cares, it is recommended that the call is made at least 72 hours prior to travel. Representatives are available at 1-855-787-2227 Monday through Friday 8 a.m. to 11 p.m., and weekends and holidays 9 a.m. to 8 p.m. Eastern Time.

  • Area Support Groups
    This PDF file provides a listing of active caregiver support groups that meet in Williamsburg and on the Peninsula. This document will open in a new browser tab.